We are on a mission to educate people about genetic predisposition syndromes, prevent hereditary cancers, and provide support to those dealing with cancer and their loved ones.
We are on a mission to educate people about genetic predisposition syndromes, prevent hereditary cancers, and provide support to those dealing with cancer and their loved ones.
My mom had a one-in-a-million zest for life, and I’m not exaggerating when I say she lived every day to its fullest. Be like Eileen, and don’t take a single moment for granted (or a single item of clothing at face value). But also, be proactive, get tested, and spread the word. Do it! I insist! (Yes I am nagging you through this article, just as my mom would have.) Please get tested for BRCA gene mutations and other hereditary cancers, so that you can live out the rest of your lives like my mom desperately wished she could have. Do it for yourself, do it for your family, do it for me, and most importantly do it for Eileen.
Events
April 28th 2024 – 12:00pm
Eileen’s Legacy Fundraiser
Join us for an afternoon of fundraising and fun at Eileen’s Legacy Fundraiser, April 28, 2024 at 12:00 PM.
We are excited to honor Eileen’s legacy with all of her favorite activities. This includes a shoppable bazaar of her favorite brands and auction items, catering from one of her favorite restaurants Perl Restaurant by Chef IP, chatting with new and old friends, and most importantly fundraising for and learning about her incredible cause. At The Eileen Youtie Foundation we are on a mission to educate people about genetic predisposition syndromes, prevent hereditary cancers, and provide support to those dealing with cancer and their loved ones. All of these issues along with many of you were so close to Eileen’s heart and we are honored to continue her legacy. Don’t miss this opportunity to celebrate Eileen’s trailblazing life and cause!
Register soon because space is limited.
We hope you’re able to join us!
Location: Level Three Miami, Biscayne Boulevard, Aventura, FL, USA
March 19th 2023 –
The Eileen Youtie Predisposition Syndrome Initiative Launch Event
We gathered in remembrance of Eileen’s Yahrzeit and celebrated the official launch of The Eileen Youtie Predisposition Syndrome Initiative. Our heartfelt event took place on Sunday, March 19th at Joe’s Stone Crab, where from 12:30 pm to 2:30 pm, friends and supporters joined us for lunch. It was an opportunity to meet the dedicated Sylvester team who is passionately continuing Eileen’s legacy, to listen to inspiring stories from patients, and to share our collective vision for the future of this important initiative.
Location of Remembrance and Celebration: 11 Washington Ave, Miami Beach, FL 33139
We are grateful for those who confirmed their attendance by Monday, March 13th and made this event a poignant and memorable gathering.
Fundraising
Raised To Date
$550,000
Goal
$2,000,000
The Eileen Youtie Predisposition Syndrome Initiative
We are proud to share that during National Cancer Prevention Month, the Eileen Youtie Predisposition Syndrome Initiative opened clinic doors at Sylvester Comprehensive Cancer Center on February 24th, 2023, to patients and community members. Please enjoy the below photos from opening day!
In The News
Channel 10 News Segment
Initiative Promotional Video
Initiative Opening Announcement
New Team Members
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Alexandra C. Smith, BSN RN – Nurse Navigator
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Bianca Tardi, MSN APRN FNP-BC – Nurse Practitioner
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Ray Jia – Sr. Clinic Assistant
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Shannon Signorello – Social Worker
A Note from our Team
Your generosity and unwavering support made this effort possible. Thank you for believing in us and for upholding Eileen’s legacy! A first-of-its-kind endeavor, the initiative brings specialized, coordinated care to predisposed individuals at higher risk for cancers due to inherited genetic mutations. Researchers have identified more than 50 hereditary cancer syndromes, with the most frequent cancers being breast, ovarian, pancreatic, prostate, stomach, bile duct, gallbladder cancers, and others.
The initiative, named in Eileen’s honor, is a destination for patients to receive personalized screening, risk reduction strategies, and specialized survivorship care to fight the cancers linked to a genetic mutation. The very first patient to be seen in the clinic, Tracy Milgram, shared with us the following quote about her
experience:
“As someone who has carried a genetic mutation for 20 years, I had to go to different clinics to try to coordinate and keep up with the prevention plan all by myself. It was nearly impossible, especially because in this emerging field, new variants are identified, and recommendations are updated often. I needed support navigating through all the recommendations for my genetic mutation and the expertise to help me prevent the cancer I was at a higher risk for. The Eileen Youtie Predisposition Syndrome Initiative at Sylvester Comprehensive Cancer Center is a program needed in our community. It offers patients like me coordinated care, genetic counseling, a personalized care and prevention plan, psycho-social support, access to Sylvester experts in cancer high-risk, education about genetic predisposition syndromes and survivorship care. I feel empowered, informed, supported, encouraged and am grateful to finally have the comprehensive care needed for my genetic predisposition to cancer. This program will absolutely prevent hereditary cancers and provide help to those dealing with cancer and their loved ones.” Like Tracy— the very first patient— we remain most grateful for your support of
Eileen’s dream, and we are proud that with you by our side we can continue to support these efforts.
Dr. Carmen Calfa, Eileen’s breast oncologist and partner in this mission was on hand to oversee the clinic opening. “I’m overjoyed to see our dream come true. Eileen was a great advocate for universal genetic testing for those at high risk,” said Dr. Calfa. “Thankfully, she was able to see how impactful her advocacy was in her lifetime. She desired patients to have access not only to testing but also to experts and options readily available to help with important next steps as well as prevention. That is what this initiative, named in her honor, will do and we’re proud to lead the way, break new boundaries in cancer care and prevention and honor her special legacy at Sylvester.”
The Eileen Youtie BRCA Campaign
Genetic Testing Discount
Color offers a Multigene Hereditary Cancer Predisposition Panel (30 genes) for a discounted fee of $100 off with our promo code YOUTIE at checkout. Post testing genetic counseling is included in the cost of the test.
Use Promo Code YOUTIE at checkout